Oxygen Helps

They say a picture is worth a thousand words. If that's the case, have a look at these:

This is Emily sleeping off her oxygen. We were watching TV, and she fell asleep on the couch last night.

Note how red her face is and the pale circle around her mouth and nose. She was really working hard to breathe in this picture, and her heart and respiratory rates were all over the place. Neck vein was also visibly pounding so hard, you could see it from across the room.

Now look at Emily sleeping about a half hour later with her oxygen on. Very calm, relaxed, heart and respiratory rates down, and just look at her color! She was sleeping like a baby!


Not sure what it is about that little bit of oxygen that helps her so much, but we are so thankful that we have it available to help her rest easier. We know the difference it has made in her life.

We are having problems with nosebleeds again, and from the amount of blood she's lost lately (soaked most of a towel Friday night), I'm guessing she might be anemic again. We've tried EVERYTHING for the nosebleeds, and they seem to improve for a while, then bam. Of course I know the ultimate answer to that is to wean the oxygen to minimize nose trauma, but with watching her work so hard to breathe every time we try, how can we do that?

As always, we're open to suggestions.